Here is a copy of a mesage we just received from Baroness Campbell. I’m too tired to tweak and make this shiny, so if you can just leave your opinions in the comments thread, it would be much appreciated :
“As you will see from yesterday we talked about the importance of language. So I’m thinking of challenging the title PIP. I think it should remain Disability Living Allowance, after all that’s what it’s about, disabled People’s extra cost of living. It shouldn’t not based on independence (defined by professionals) conditionality.
The condition that one should become “personally independent”, which is likely to be defined in a medical model way, will not result in the independence disabled People have demanded over the years (i.e. independent living is about having choice and control over your life like that of non disabled people.
It includes all things in your life like work, education, raising your family, leisure, personal mobility etc) If the government want to continue encouraging us take responsibility over our lives, then they must give us the right to make our own decisions as to how DLA money should be spent.
It must not be measured by able-bodied people’s assumptions as to what it is to be independent. Could you ask your networks what they think. I believe disabled people want to keep disability living allowance as a universal allowance.
We want to continue the principle that once you become eligible it is left up to you (personal responsibility) as to how you spend it to minimising the extra costs of being a disabled person, therefore we shouldn’t be constantly reassessed as to how our so called independence is going. I’m thinking of demanding we keep the language that means disability living. And as we know, living must be defined by the person whose life it is. (Disabled people are the experts in their own situation)
I could put this down as an amendment, but I need support from the outside world, to make it important and powerful.